Senior health care access across much of rural America is in a state of crisis.
Decades of agricultural industrialization and consolidation have eroded rural employment opportunities, leading to a steady exodus of younger residents to suburbs and cities in search of work.
As small towns have depopulated, aged, and lost their economic base, their medical infrastructure has contracted in kind.
Hospitals, clinics, dentists, nursing homes, pharmacies — they have all felt the pain of increasing financial pressures. Most facilities depend on Medicare’s razor-thin reimbursement rates and alarming numbers of them have been forced to shutter operations in recent years.
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Providers that stay open deal with many staffing challenges, with both money and skilled workers in short supply. Residents who remain find themselves stuck in a growing number of medical deserts. While these dynamics affect all rural residents, seniors — with their more frequent and varied care needs — are hit particularly hard.
NPR reporter Juliana Kim and I traveled across the Great Plains of North and South Dakota in May to photograph and document this predicament.
Along the way, we heard from a cross-section of Americans, including residents of shrinking farming towns, medical providers, assisted living facility staff, caregivers and Indigenous citizens.
"My husband had Parkinson’s. … We had been paying all those years for nursing home insurance. Well, he ended up in the nursing home for 24 hours, then he passed away. So we probably lost $50,000, you know? But what do you do? You’re damned if you do and damned if you don’t."
—Lynda Hoerauf, 86, Hebron, North Dakota
"Some people will just say, ‘My daughter calls on Sundays. And that’s the highlight of my whole week. I get to talk to someone on Sundays, so I know that I can make it the next six days.’ That’s crushing loneliness and that’s something we need to address right away."
—Kyla Sanders, Glen Ullin, North Dakota
"If you’re a caregiver, you’ve got to be a doctor, a nurse, a dietician, an activity director."
—John Chicoine, Sioux Falls, South Dakota
From having to drive hours for emergency or specialist care to dealing with a patchwork system of health insurance, older rural people confront a range of access struggles, with many left to ration or forgo care altogether.
We also learned about various attempts by committed providers, nonprofit organizations, state employees and community members to help close some of the many coverage gaps.
"People tell me, ‘Take care of yourself, caregivers need a break.’ But I ask: How do we make that happen? That’s why we need respite care, especially in rural places."
—Carmen Magee, Fort Pierre, South Dakota
"It’s just the nature of a state with some 750,000 people. And when you’re so spread out, specialists doesn’t tend to want to come here."
—Bryan Hochhalter, Bismarck, N.D.
"Tamra and FirstLight have been a lifesaver for me."
—Jim Jundt, Rugby, North Dakota
"We have gotten good doctors in the past, but as soon as they get good, what happens? ‘Well, I paid off my loans, goodbye.’ Here comes another doctor to test us as lab rats."